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Wooburn Green student treks Chiltern Way in aid of inherited medical condition
A STUDENT from Wooburn Green is planning to hike the whole of the Chiltern Way to raise money for a little-known condition which affects most of his family.
Phil Pitcher, 22, is camping over six days in September for Stickler syndrome, a connective tissue condition which causes multiple health problems and is largely misdiagnosed.
He will be tackling the 134-mile circular route, which covers four counties, from next week carrying his own gear and topping up food and water as he goes.
Phil said: "The condition is not widely known and most people have never heard of it.
"I try to do a challenge each year to raise some funds for the Sticker Syndrome Support Group.
"I’m looking forward to it, and I’m really hoping that farmers or pubs near the Chiltern Way will let me camp with them as commercial sites are not very accessible."
Phil’s three brothers, his mother and some of his aunts, uncles and cousins suffer from Stickler syndrome, a genetic condition with a 50 per cent chance of being inherited.
It affects the body’s collagen, a vital protein source, and can cause detached retinas, cataracts, stiff or over-flexible joints, cleft palate, possible hearing loss and more.
Around three in 10,000 people suffer from the condition but many will live their lives undiagnosed as symptons vary drastically.
The SSSG helps families suffering from Stickler syndrome as well as educating those in the medical profession about the condition.
To make donations, visit Phil’s page at www.justgiving.com/Philip-Pitcher
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