Youngster 'doing well' as mum plans second fundraiser (From Bucks Free Press)

Arlia Megson 'doing well' as mum plans second fundraiser

9:44am Monday 15th October 2012 in News By Simon Farr

A YOUNG girl battling a rare condition is doing well, her mum says as she plots a second fundraiser for the charity which supported them.

Arlia Megson, 7, is back at school after doctors said she was in remission from medium vessel renal vasculitis - a devastating illness which damages the blood vessels, which can affects other organs.

Mum Debbie, 38, said: "She’s doing well, she’s up and down to Great Ormond Street for treatment, but the condition is under control.

"The Downley School has been very supportive, her friends have always sent her get well cards so it’s nice she’s back with them - she’s a bright little button."

Ms Megson is in the process of arranging a masquerade ball at the Crowne Plaza in Marlow on December 1 to raise money for Rosie’s Rainbow Fund - the charity which has supported the Downley family.

A similar event at Adams Park in March last year raised more than £5,000 from ticket sales alone for the organisation, which was set up in memory of Rosie Mayling, who died from vasculitis in 2003.

Ms Megson is herself battling Multiple Sclerosis and has not ruled out drumming up support and awareness about the condition in the future after she was inspired to speak out by Jack Osbourne.

She said: "I was diagnosed just as Arlia started responding to her treatment, it’s a condition people live with for years.

"Rosie’s Rainbow Fund is something very close to my heart, that’s what I’ll be spending my time and concentration on - but possibly in the future I might do something for an MS charity."

Tickets to the ball at the Crowne Plaza on December 1 cost £40, call 07957 956696 to book or for more information.