The heartbroken family of a popular 23-year-old who had a "wonderful smile and an infectious laugh" are set to take on a gruelling challenge in his memory.
Shane Corrigan died in 2018 from sudden unexpected death in epilepsy (SUDEP), only three years after he was first diagnosed with epilepsy.
Now, 20 people, including Shane's mum Margaret and sister Megan, from Chalfont St Peter, are organising a cycle ride from London to the island of Achill, off the coast of County Mayo in Ireland - where Shane is buried - in his memory.
Paying tribute to Shane, his family remembered his "larger than life" personality, saying: "Shane is remembered for his larger than life, determined personality. He had a wonderful smile and you could pick out his infectious laugh from across a room.
"He was popular, unfailingly positive and had an ability to bring people together, placing a value on friendship, honesty and integrity.
"For Shane, it didn’t matter who you were, he wanted to involve you in his conversations and debates and because of this, you always felt better for having been in his company."
Margaret said: “Shane insisted that the hardest thing about living with epilepsy was having to tell other people he had it.
"He once said ‘I either have to really care about someone or barely know them, because once I tell them I have epilepsy I can see people’s perception of me change'.
“We are doing this to make a difference in memory of Shane – we want people to know about epilepsy risk and SUDEP so that the lives of others can be saved.
"If this bike ride from London to Achill, a journey Shane made often in life, can prevent just one epilepsy-related death it will be worth it.”
Margaret had not ridden a bike for more than 30 years until she started training for the challenge, in which other Chalfont St Peter residents Ron and Stef Fagan, Suki Channa and Grainne O’Donnell will also be joining.
Shane's dad Kevin will be driving the support van.
Around 500 seizure-related deaths each year in the UK are SUDEP deaths which are sudden and unexpected.
They differ in cause from seizure-related accidents such as drowning or status when a person has prolonged seizures.
They usually happen out of the blue; at night during sleep; and the cause is not fully understood. In many deaths, the person is young and healthy.
The cycle run will take place from August 20-27, raising funds for SUDEP Action and Epilepsy Ireland.
To donate, go to www.gofundme.com/f/cycle-for-shane-london-to-achill
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